weeb made me this huggable fibroid doll!
i go into surgery tomorrow at 7:30am, pacific time. i will be having my fibroid removed, because it's grown to be rather large and is causing a lot of pain and problems. i can't really express how i feel about doing this. i've been through a lot of different emotions about it so far. i guess all you, the random internet passerby, need to know is that i don't want to have to do it. and that i find hospitals very very dehumanizing.
i feel defeated by how blase everyone acts in the hospital. i understand that they're densensitized and that is it just their job to put me through the medical machine and make sure i have a patient number and enter my information in the computer. but to me, this is one of the most traumatic and vulnerable experiences of my life. so it's hard to handle it when most of the people who will be interacting with me won't realize or accept that fact.
yesterday, after going for my pre-op appointments, i wanted to just run away somewhere. i was so tired and defeated. i had cried through the whole thing. my doctor is good, i like her a lot. but all the nurses and people you deal with who don't know you and just want to take your blood and know your patient number and not talk with you or look at you. it's so sad. i hope that tomorrow it's a little nicer. i was crying and angry, so i guess i wouldn't have wanted to engage with me either. in the morning i am going to try to just be open and kind to the people who are trying to help me, even if their process and beaurocratic method of handling me seems wrong and broken to me.
i don't know how i'm going to get through it all. i am going to have a little ativan tonight, i think.
i'm going to be in the hospital until saturday morning. my phone gets emails, to phone@elly.org, and i'll maybe be on AIM on my phone (ellyfone), so say hi if you want. i don't know how awake or not awake i'll be.
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in other news! oliver got us a kitten! grainy phone cam pics here: http://elly.org/days/2005/11-02-2005/
YAY it's all over. it wasn't that bad. there were some hard moments but i made it. i feel a lot better, and i'm so relieved that it's over and done and that the big bad thing is not inside me anymore. i got home today and i'm very sleepy and snoozy, and think i'll probably be bored of being tired all the time soon. everyone has been so incredibly amazing to me that i don't know what to do. i'm hoping to write more about the whole ordeal soon, i think it will help people if i write out everything i learned throughout the fibroid ordeal. but now i think i'm sleepy again.
love. no more surgeries ok? ok.
in recent months, my life has dwindled into a rather depressing pattern. working*, worrying about my fibroid and sometimes crying with fear over it and the surgery, staying up late reloading websites. there has been little else that i recall - only some positive moments of gentle loving routines with my oliver. morning grumpies and coffee, waking up at an hour that i can handle. the intermittent return to focus on a few large beaurocratic matters that i have been grappling with this year.
*working:
the problem with my job is that it is wonderful and compelling enough to make me feel accomplished while distracting me from the desire for accomplishment or immersion in my own personal goals and passions. it really is a problem.is it enough to simply work and do a good job, if your work is something that's really useful and causes you to be in contact with people who are at the top of their game? even if their game is not your game?
i don't know. working where i do (carefully avoiding directly naming the place so this doesn't get googled) has brought me in touch with all these incredibly intelligent people. and involved me, though tangentially, in a movement (really, it is a movement) that is very important to a large number of people. the bottom line, however, is that though i intellectually and abstractly appreciate the work my organization does, it's not my passion. but it is enough to sort of.. keep me feeling like i'm Doing Something Meaningful. and thusly, remove the sense of urgency i have felt about chasing my own meaningful goals.
i'm not sure what to do about this. in my life, my method of being is to wriggle hopefully into spaces where i feel i can Belong More, then study and work and grow in ways that help me do that. But I can't really Belong More in my current position, because I don't wish to study the relationship of law and technology. So i'm a bit confused. Because I also like it.
anyway, i've gotten myself into this sort of depressive escapist habit of laying around for hours in the evenings and reloading webpages. reading blogs, you know. laying about. it's kind of the same as sitting around watching tv for hours. i'm trying not to beat myself up for it, because i truly believe it's a function of just being so worried about my health this year and about all this mundane life stuff. i couldn't do school this fall because of surgery, so i just kind of didn't do anything but work.
but my brain is kind of withered up. my soul is a little weak and hard to locate. i don't write, i don't write poetry, i don't read poetry, i don't read charts, i don't read astrology books. i don't cast the iching, i don't cook, i don't even go out back and hug the tree. spiritually, i have become vacant. i am definitely a product of my environment, and my environment has really only been home and work, so that's part of it.
but i'm very worried. i know it's only been 5 days since my surgery but i'm ready to make a change now, to write again, to make things, to be with like minds, to be in nature, to lose some of the weight i put on, to return to the yoga mat. i want to stop fantasizing so much about how life will be, later, when i can motivate, and just be doing things. seeing poets, hearing jazz, being real. i open my text editor to begin writing but i just get a few sentences out, or half an outline of something, before i get distracted back to the blogs or chat or i don't know what. THIS CANNOT GO ON.
i have so many projects that happen on the computer (i've got tons of small websites that i work on for artists and writers and others who can't build sites themselves) that i feel very bound to the machine - shouldn't i be working on these noble endeavors? but i often procrastinate so much online that i develop distaste for the machine before i even begin the work, in any given session.
i don't know what to do. some ideas:
- stop trying to give every artist/project/nonprofit/etc that i know a website
- in this two weeks i have off work, do some kind of 'internet fast' to change my habits about the computer (is this possible? i fear it would flop)
- start carving out time to write in pen on paper
- take a break from words and word pressure and the computer too and only paint
- start going to the library
- i don't know?
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in other news, i am recovering well from surgery. my belly feels really weird, it's still numb, i don't get how they made that happen. i am still in pain but as long as i don't move around too much i don't notice that much. i am weak and often tired and have started to become antsy and maybe overly inwardly focused during this time i'm spending at home. oliver is really tired - he's been so amazing through all of this, and is running out of steam a bit. i'm trying to write down the whole story of my fibroid as a resource to others, but aforementioned problems have taken hold.
it's kind of sad that i'm back to this mundane internet habit, because for the first four days after surgery i experienced such euphoria. i felt very vulnerable but very safe and loved by the world. i felt more myself than i had in a really long time. i felt ready to be brave again, and be myself again, and be wild and crazy. to dress how i felt and do what i wanted, and write what i wanted, and think what i wanted. i felt like i had given myself over to something and it had returned me safely. i wish i could maintain that feeling, it was really a pure love feeling, a green heart chakra light. no doubt so buoyed by the intense energy that was poured into me by the beautiful vessels that are my chosen family. by kristie's vigilant meditation in the waiting room, megan's crystals, oliver and jim and everyone. you all know, you know, don't make me NAME NAMES.
how do you make a change? how can i change this life? i'm tired of hiding and laziness and feeling vaguely empty at 2am after reloading livejournal for two hours. really. i want to use the internet for good and for art.
now, i am sleepy and will go sleep for a long long time.
it's been a week since surgery, today, and i'm doing well. yesterday i was so tired that i could barely move. i was so tired that when MORE PRESENTS came in the mail i had to work hard to get the energy to open them. it has been a really crazy week of attention and gifts and love from everyone. i'm so appreciative but i'm still a little bit confused, like "i didn't really DO anything that great by getting cut open."
it's totally been christmas around here. oliver got me a playstation so i can play katamari damacy! and a second base station so i can have net in bed. and has been feeding me, taking me on drives, and bringing me coffee every day.
my mother wheedled my utmost desire out of me while i was incredibly doped up in the hospital, then went and bought it for me. i had totally forgotten, due to the dope, when she called yesterday and asked if it had arrived yet. she also got me an amazing coat from anthropologie that i had been eyeing for some time. god it's amazing. it makes me want to go to new york just so i can have a real need to wear it. but i'm sure i'll wear it here anyway. i sense an oncoming period of elaborate outward stylings. what should i do to my hair? crap.
grs got a hint from oliver and sent me seeds to have an herb garden! i am super psyched about this possibility. i really want a window box now! do you think you can plant stuff like basil and dill in november in sf? or does require spring? it IS the rainy season, which seems promising.
today is the first day i wore jeans since surgery! life without the fibroid is so grand. i can sleep through the night without peeing every two hours. and my jeans felt so much better - it didn't hurt and suck where my waitsband went across my gut. in the past that would have caused unhappiness and pressure in the guts. yay. yaaaaay!
oliver and i like to drive to santa cruz sometimes, to poke around, and eat at saturn cafe. today, i woke up cranky and irritable, storming around and being grumpy from being stuck inside too much. oliver intuited that he had better get me out of the house somehow. so we went south to xep's hometown.
we stopped to get some biodiesel on the way:

wandering around capitola, we found kristie:

and then we stopped for warm drinks in a familiar place, where there was a well loved dictionary available:

after all that, i changed my name to V. Sleepy and we rode home up the 1, listening to epic beautiful sitars on the newest and strangest FSOL album. passing lighthouses and beaches in the dark.
no luck sleeping. was reading stories jhumpa lahiri's "intepreter of maladies" before sleep. wonderful. i got a little too riveted maybe. short stories are satisfying because they must arc so quickly. before you know it you've been through a lot.
i am so in love with my cats. it amazes me at times. my cats and my plants. these simple lives i have around me. today, yoko and the new kitten (buckminster franklin) were harmoniously together for the first time since franklin's arrival here. after slow introductions since his arrival a week and a half ago, i let him out of his room, and they got along. they even played a little! it makes me so happy. i hope they will grow to be pals, though yoko is not the grooming and cuddling type. she is very austere and for this, i love her so.
sometimes, i try to sleep naked and it's just not cozy enough. i think that is part of the sleep challenge on this eve. nakedness gone uncozy. i got up and ate toast and put some of oliver's boxers on.
earlier today, i was suffering from such tiredness. i'd been perky for a couple of days and then today the waves of healing tiredness returned. now, my incision is hurty and tingly and weird, and i will eat some pain pills to hush it up so i can snuggle into bed.
i'm starting to feel the pressures of life return. i was laying awake thinking about all the things i need to do. sigh. i wish i wouldn't do that - they get done, whether i lay awake thinking of them or not.
i just spent an hour updating the catster pages for my cats:
yoko --> http://www.catster.com/?169998
bfp --> http://www.catster.com/?224735
...
IN OTHER NEWS:
i am going back to work monday. i'm looking forward to having my routine back. but hoping i don't get myself too stressed out. i'm a lover of stress.
LOTS OF BAKING is about to happen for thanksgiving feast with pals, and to deal with all the insane amounts of produce in our kitchen. we have a ton of squash and apples. CORNUCOPIA - i spell this right?
I CLEANED THE BATHROOM
soon, i will register for a bunch of spring classes at CCSF. but that won't matter, because life as we know it will end within the next few years. while all you assholes sit around updating your "blogs" and working at your 9-5. oh shit, wait. hi. anyway.
todo:
-get warehouse
-solar panels
-start growing food in warehouse ASAP
-chickens?
also, since surgery i have not craved much animal. i have stopped consuming soy in any form, however, and have reverted to regular milk in coffees from awesome place. though "healing with whole foods" would have me eat: no dairy, no meat or animal products at all, and no soy, i am not interested in living a joyless life (ie: one without lattes and mochas) so i'm trying to impose some balance. i do feel better not eating soy.
phone is ringing. bye.
it would have been cooler if i'd woken up and the doctor came in and was like "ok, you're doing well, it went well... now you should be able to fly just as soon as the new wings heal"
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IN OTHER AWESOME NEWS:
the kitten (buckminster franklin percival elvis today's name jonez) and yoko (whose middle name is bernice) are getting along! and they have been playing! watching them tonight made me so happy i wanted to cry. my big fatty yoko was scampering!
this all reminds me of when i started complaining that jennifer ringley of jennicam fame was only posting about her cats and her garden. SORRY, gone are the days when i post dramatically about all the broken hearts.
in our blue bathroom by candlelight and pink fairy lights, i had a bubble bath. i was alone in the house. in the hot water i felt my pubic bones through my skin and flesh, trying to imagine if there was room for a baby's head to pass through them. it seemed unlikely based on what i could feel but i knew that it must be possible, since that is what's supposed to happen.
i reached into my vagina to feel what i could of my uterus, for the first time since surgery. i had been putting it off, from fear, and understanding that it wasn't time yet. as my fingers grazed my cervix i was initially relieved to find that it was in the expected location, and felt just as i remembered. i reached further, past my cervix to the underside of my uterus, where there used to be a hard swelling that i could feel. before, it took me months to realize that the hard mass there was the fibroid. but now that is all gone.
in it's place, i felt nothingness first, and then, the underside of my uterus. it felt ragged. i recoiled slightly. i felt it again, like a tongue in the socket of a lost tooth. i was filled with pity and remorse for my wounded uterus. it was terrible. i felt like a bad mother. i pulled my hand out of my parts and put both hands over my healing incision. then i spoke quietly to my uterus, apologies and sadness for all the loss and trauma. i am sorry for what you have been through, small gentle organ. you were made for bringing only life and soft edges to the world. i did my best to release you from the badness. i hope you understand.
this most recent transformation is one in a long series of transformations that have happened within my uterus, vagina, vulva. i cried gently for the loss of something, finally alone to feel grief unashamed in the dark bathroom. there was a time when i held my vulva desperately after rough sex in my teens, one of my inner labia swollen to many times its normal size by the unskilled friction of my first boyfriend. i knew it would never be the same and i cried bitterly for the loss of my bare youthful innocent privates. now i cry again for the further unfolding of the personality of my reproductive organs. must they always break and heal? will any lover want to invest in something so flawed and so challengingly beautiful?
i just wanted to become small and be a little girl again, and not be fertile and the carrier of this tender wounded organ. i longed for the time that i sat on the floor of the 10th street home and told oliver that i would most certainly have the child if i accidentally got pregnant. when i would have been *happy* to have found myself pregnant. i was bold and could imagine it then. now after feeling my scarred womb with my fingertips, i can't imagine going through it. so much boldness lost.
my fear is so sharp. i know it is right to believe that i should be lovable in my flowering years, a year older as of yesterday, close to 30 and having done so many amazing things. i know it is right to expect that any man that comes near my incision, my scar, my most personal wounds and healing, should be respectful of the complex beauty of an older and interesting person. but at times i am filled with fear. mixed with hatred for men and their judgement. it seems that even the men who love me most completely reassure me of their love for my womanhood while their mere presence fills me with even deeper fear of being let down and let go. let go for being too sexually complex, too challenging, not pretty enough in this prematurely damaged state to be worth the time of a dick seeking fertile ground.
when can i ever let anyone near these hurt parts again? who can respect a healing wound as the wonderful thing that i believe it is? i wish to call megan or go with alana to wimminsland and bleed into the towel and be with trees. i certainly don't wish to spend more days on the computers with the masculine and non-intuitive challenges of technology all around me. i love oliver deeply but there are times when a lady must venture off into the forest truly on her own. when can i be brave and safe enough to do that again, metaphorically or not?
now is the part where i apologize for being so intense. except i'm not going to tonight.